Friday, December 14, 2012

More treatments coming up...

The dr confirmed our suspicions, and agreed that Kaiden's ear and cheek seem more swollen than last time he saw him. We have an ultrasound scheduled for Christmas Eve at 9:00am. Good side of that is that both Mike and I are off work, and it's early, so we shouldn't be there all day long. We should still be able to salvage Christmas Eve after the appointment. We will also spoil him rotten the next day!

Hopefully, we will have another schlero (injection) appointment scheduled for the beginning of January. If they aren't able to fit us in then, we will have to wait until after the new baby comes. Probably March or April. The dr agreed we should get it done now, as we always wait awhile after each injection to do anything else.

I originally thought the timing was horrible. But if we can get this injection appointment done before the baby comes, then Kaiden will hopefully still have some time to recover from it before becoming a big brother and dealing with that big change too. I'm not worried about the physical recovery, as he always bounced back quickly after being sedated. He just needs a good sleep and a good meal, and he's back. I'm more worried about his emotional state afterwards. He was so untrusting of us after the surgery, that I hope this appointment doesn't bring back those memories or emotions. I guess only time will tell...

Friday, December 7, 2012

It's been awhile...

It's been awhile since I've wrote on this blog. I guess life just gets busy, and I get more forgetful.

We've only had followup appointments since Kaiden's big surgery in March. He's been looking great! We've been so blessed that the surgery went so well. It did take a long time to get over the guilt of putting our baby through that. But now that we see the real results, we realize we did make the right decision.

Just when we start to almost forget about what this kid has been through, something pops up. It will be a lifetime roller coaster ride of happiness, then worry. Unfortunately right now, there seems to be a little bit of swelling infront of his ear. Two hard lumps seem to have popped up from nowhere. We do have another followup appointment on Tuesday, which is great timing, so I will bring it up to the attention of our doctor. It just sucks...just kind of a wait and see thing.

Also, the timing couldn't really get any worse! We have another baby on the way, due January 29th and it's coming quickly. If we need to book ultrasounds or an injection appointment, they may just have to wait until after the arrival of this new little one. I know worrying and stressing out about it isn't good for me, but how do you not! I once again wish I could just take this all away from him. But I have to try and stay positive, and pray the swelling will reside on it's own. This is the first time we have had random swelling without reason, since surgery. He did have some swelling when he had a double ear and throat infection, but it resided once the infection was over. Now, he seems healthy, so not sure what is causing this all of a sudden. It makes me realize this really is a lifetime journey for this boy, and us.