Sunday, June 24, 2012

The roller coaster ride continues...

Our appointment was moved up from September to June. It's coming up on Tuesday. My original thought about it being moved up was, of course, worried. I thought maybe the doctor wanted to move it up because he was concerned the cysts were growing back. Now, I'm actually glad it was moved up.
Our usual doctor has taken a medical leave, and we are meeting with another dr. We've met him in the past, for a second opinion, and he also helped on Kaiden's surgery. I'm glad this appointment is coming up quickly because we've been through quite a bit lately.
Kaiden had an ear and throat infection a couple weeks ago, and it laid him out for 4 days. The poor boy just slept on the couch all day long. Didn't eat, didn't talk, just slept. We had him on antibiotics for 10 days. His cheek and ear area became very hard and swollen. It even seemed like it was affecting his speech and tongue. Obviously, we were very concerned and it took our doctor in Hamilton 2 days to return my phone call. Our last doctor would email a reply within hours, and definitely call back the same day. The outcome was that swelling is normal when he's fighting an infection....good to know after freaking out for 2 days!
Once he was off the antibiotics, he caught a cold. He's still fighting a bad cough, but a checkup with our local doctor confirmed nothing more was needed in the way of antibiotics. He's pretty much back to his usual self...except for his cystic hygroma. It is still hard, and he doesn't like us touching it. Even putting a shirt over his head makes him cry. Hopefully we can get some answers on Tuesday, and a future game plan.
I'm still in denial that we will be dealing with his for his whole life. I seem to live in a fairytale world where one day I will wake up and it will all be over! Time to get real, I think!